Many of us share lots of aspects of our diabetes lives online for the world to see. What are some of the aspects of diabetes that you choose to keep private from the internet? Or from your family and friends? Why is it important to keep it to yourself? (This is not an attempt to get you out of your comfort zone. There is no need to elaborate or tell personal stories related to these aspects. Simply let us know what kinds of stories we will never hear you tell, and why you won’t tell them.) (Thank you Scott E of Rolling in the D for this topic.)
As a parent of a child with diabetes I’m in the odd situation of writing about something that’s an inseparable part of my life, but isn’t actually mine. My life was changed the day my 23 month old was admitted to the hospital, but that’s because his life would never be the same.
I began blogging one month after Benny’s diagnosis. I’ve always loved to write and I was already on the radio talking about everything else. Sharing my family’s journey with type 1 diabetes seemed natural and right. It also helps me process all the crazy things diabetes brings to our lives.
Each post brings decisions. How much to share? How much to keep private? A good example is Benny’s A1C results. I used to post them, I don’t anymore. That number is my son’s private health information. I do share momentary blood sugars and lots of ups and downs, but I’ve decided to draw the line there. The A1C is a loaded number for many of us. Pride, shame, dread, whatever. Keeping it private helps make it less of an emotional issue for me. And I think that makes a difference to my son.
(I’m also guessing that as he hits his teenage years his A1C is going to up. I don’t want to be the mom who went from bragging about amazing numbers to the one who feels ashamed and embarrassed, asking herself “what happened to my awesome kid?” Of course, the kid is still awesome, but I’ve seen those posts. It’s not pretty.)
When I share online, I try to remember that my child’s diabetes is not mine. Our experience is tied together but it’s not entirely my story to tell.