Off the Dial

More Than Diabetes #DBlogWeek


Lets wrap up the week by sharing a little more about ourselves, beyond the chronic illness we or our loved ones live with.  Share an interest, hobby, passion, something that is YOU.  If you want to explore how it relates to or helps with diabetes you can.   Or let it be a part of you that is completely separate from diabetes, because there is more to life than just diabetes!  (This topic is a suggestion from the 2016 #DBlogWeek survey.)

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I’m glad the last day of Diabetes Blog Week asks us to write about something other than diabetes. Turns out, I was unable to participate in most of this event this year, and for once, diabetes wasn’t to blame. Amazing, right?

Most of the stories I share are about my son with type 1, or my family’s experience with diabetes. I rarely talk or write about my daughter or share a lot of stories about my kiddos that don’t have to do with T1D. They’re at the age where they’re old enough to have their own stories. And we have a family policy of not over-sharing on social media. That means I don’t get to brag about the good stuff often enough to satisfy me, but it also means fewer possible embarrassments for them later on. I hope!

This past week, my daughter needed me. Do you know I have a daughter? I do! She’s 15, she a great kid and the total package of smarts, looks and sarcasm. (You can listen to her one and only public appearance on the podcast here. Kid doesn’t like public speaking or attention. The family rebel!) Something came up, it took more time than she usually needs from us, and now everything is back to normal.

Sure, I’m a D-Mom, but I’m also just a regular mom. And sometimes diabetes can go into the background when more important stuff comes calling.

Lea in 2007(!)

Lea in 2007(!)

 

Learn more about Diabetes Blog Week here and go read some terrific posts!

Expect the Unexpected #DBlogWeek

Hey! It’s Diabetes Blog Week again! All week amazing people in the Diabetes Online Community will be sharing their thoughts on all sorts of cool topics. Karen Graffeo organizes this event every year – I spoke to her for the podcast last week. You can listen here (Karen’s interview starts at 39:00):

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Today’s topic: Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random.  What are your best tips for being prepared when the unexpected happens? 

After more than ten years of type 1 diabetes, I can say that the only thing you can be ready for IS the unexpected. Especially with kids. Site comes off during a birthday party? Low-carb drink turns out to be big time sugar? Too much sand in an inset to reinsert? Yup. It happens. While I never like that feeling of “fix it later,” we’ve learned that Benny is more resilient and diabetes is less of an emergency than I ever thought it would be during those first few scary months after diagnosis.

My husband likes to say the backup plan is more important than the actual plan. That came in handy when he was a TV newscast  director and we’ve found it to be true for diabetes in action!

As just one example, a while back we took the kids snow tubing. Slade and I grew up in New York, but our children are snow-deprived. The Charlotte area gets maybe 1-2 inches a year and rarely all at once. We’re more likely to get ice or slushy yuck. Once every couple of years, we get 3-4 inches all at once and the kids go bananas.

That Saturday, we bundled everyone up and headed off to the mountains. I packed two changes of clothes and extra socks and shoes for everyone. We don’t have actual winter clothes (no ski jackets or pants) and I assumed there’d be a lot of slush and wet and general yuck. I also threw in our diabetes bag.

Benny carries his meter and a juice box wherever he goes. For the last few years, he’s used a leather pouch. It’s really a golf tee/supply bag, but it’s a great fit and Benny doesn’t feel like he’s carrying a purse!  When we take a day trip or we’ll be out for a while, I throw a bigger diabetes bag in the car. This one can hold our pump supplies, extra strips, insulin, needles, etc.   In the summer, I put the insulin vial in a Frio. Somehow, it all fits.

A day outside in the mountains means stopping on the road for a big breakfast. Our kids love the Waffle House and I’ve resigned myself to eating there (I try not to watch the grease on the grill). After something smothered & covered, Slade and Benny figured out the carbs and Benny started to bolus. They both looked up at me with that “something’s wrong” look. “The pump says there’s only one unit left,” Slade said.

What? How is that possible? Why didn’t the pump alarm go off? Oh wait….

That’s when I remembered Benny waking up at 1am, stumbling into my room muttering, “My pump’s making noise.” The reminder alarm was going off, indicating the pump only had 10 units of insulin left. I confirmed the alarm (which turns it off) and told him we’d change the cartridge in the morning.  Of course, in the morning all I remembered was that I was pretty tired for some reason.

We paid the bill and walked to the car. I had the diabetes bag, so I knew we should be all set. But while I was reassuring Benny and Lea everything would be fine, I was trying to remember if I’d double checked the bag and if I could even remember the last time I’d reloaded everything. We were at least an hour from home and, I have to admit, I was nervous. But, it was all there.  One quick cartridge change in the car, giant breakfast bolus and on our way to tubing (which reminds me, I really should put some extra pump tubing in the bag).

I love it when a backup plan comes together.

(partially reprinted from a 2013 post)