Off the Dial

Not even two days?

Seriously, diabetes? You couldn't give me the first two days of school?  Personal favor? 
 
My cell phone rang Friday at 1pm - Benny's inset came out. Ugh. Last year I think that happened just two or three times during the entire school year.  Since the inset is how the pump connects to Benny's body, and the pump is what gives him insulin, it's a situation that needs immediate attention.
 
Benny has a terrific new teacher this year, but she hasn't had a student with diabetes before. Neither has an assistant they've asked to help out in class. There is so much to learn; I was hoping for at least a week or two without a hiccup. You know, let them get comfortable with the routine, confident in their ability to work with Benny.
 
But no, diabetes, you have to stress everybody out right away. Thanks.
 
Everything worked out just fine. Benny had received all the insulin he was supposed to for lunch and his blood sugar tested at 100 (nice!). But he missed class hanging out at the nurse's office and once I showed up, he asked if he could go home.
 
On the plus side, when we replaced the inset he got to pull the "privacy" curtain around the little cot in the office – he loves that. I also got to talk with some of the staff about questions they had. Benny did eventually go back into class without a backward glance at me.
 
These are the moments that anger me the most about diabetes, when I'm reminded I have no control (horrors!).  A few weeks after Benny's diagnosis we visited my parents. I was intent on showing my mom that everything was fine and we could handle anything. Of course, I burst into tears about 4 hours after we got there. Six weeks after your 2 year old is diagnosed with type 1 diabetes, nothing is fine – and I couldn't keep that from my mom.
 
I felt that same gut-punch here. The start of school is stressful enough. It would have been great to have all smooth sailing for a while, but that's just not the way it goes. So I'll try to just consider this a reminder. Every day with diabetes can be different and everyone who's helping Benny needs to roll with that. 
 
Even me.   
 
(But let's keep the reminders few and far between. Okay, diabetes?)
 

Back To School

School starts today around here and I'm excited but nervous. Going back to school with diabetes means a lot more than shopping for new Trapper Keepers. 

We've had two meetings with Benny's teacher so far. She's never had a child with diabetes in her class or used an insulin pump, so there's quite a lot to talk about. I have every confidence in her;  my daughter had this teacher for first grade and she's top notch.  But diabetes changes everything.

North Carolina is one of only a handful of states that allows diabetes care in the classroom. Details of the law here.  Children don't have to go the nurse's office for blood sugar checks, injections or pump boluses. It's great because they don't miss any class time, but it puts a lot of responsibility on the child and their classroom teacher.

The biggest difference for us this year will be the lack of assistance in the classroom. In our district, Kindergarten classes have a full time assistant, first grade classes don't.  However, after our first meeting this summer – when she found out how much attention Benny's diabetes will really need – his teacher asked for a floating assistant to help with blood sugar checks in class. 

Love that we have the Animas Ping this year – that means Benny's meter is also a remote control for the pump. Giving insulin will be much more discreet – no more taking the pump out every time. 

Our back-to-school diabetes preps were featured in a newspaper column last year – you can read that here.  We've done pretty much the same thing this time around.  Benny knows more, he's working on counting carbs so he can buy lunch at school (yikes!), and the staff is more familiar with him and the whole routine.

Even so.

Pack the juice box. Write down the lunch carbs. Make sure the front office supplies are set. Keep the cell phone on.  Deep breaths.

This gets easier, right? 

 

Thanks For Your @Support

While I write quite a bit about diabetes here and on Facebook and Twitter, I don't always turn to  social media for support.  Got a good reminder recently that someone who "gets" diabetes is a just a click away.

Saturday was a record-breaking 101 degrees here. We went out to lunch and then I took Benny's pump off so the kids could run through a nearby splash fountain. Back home and spent the afternoon inside, trying to beat the heat. 

The afternoon blood sugar check was a shocker: 500BG.  Big bolus, but an hour later Benny said he didn't feel well.  At this check we got the dreaded HIGH GLUCOSE!  A closer look and the problem was quickly apparent - no pump!  I had forgotten to click it back on after the fountain run – four hours earlier. You've got to be kidding me.

Minutes later I dropped the meter.  The new remote meter – the one we just got in June. Slipped out of my hands, onto the floor. Crack.  Aaargh!

I took my frustration to Twitter. Here are some of the great responses: 

     @kellyemmaellisThe Party Wizards @staceysimms oh no simple mistake!! At least it can be
     easily corrected with pump and Benny had been nice and active to take the edge off!!
 
     @Diabetic_Iz_MeCherise/LADA @staceysimms hugs! How's he doing?
 
     @DMomBlogLeighann D-Mom @staceysimms It happens. You realized it and are taking care
     of the situation. He'll be fine. ((hugs))
 
     @DMomBlogLeighann D-Mom @staceysimms Does he feel like crud? Don't be hard on 
      yourself, look at how many times we get it *right*.
 
     @Kate_Ireland123 Kate Banks @staceysimms diabetes is 24/7, you are not. You can't be
     perfect all the time. Its not your fault, you treated it, it's over 🙂
 
     @PortblPancGrl Stacey D. @ @staceysimmsglad he's ok! And hope his BG gets back to
     normal soon.
 
Within minutes, I felt better. Still mad and frustrated, but no longer alone.